Molony’s research team focused particularly on person-centered assessment and care planning, which prioritizes a patient’s needs, values and routines, as well as their sources of joy and personal meaning. Her individual work on “at-homeness” — which identifies the home an experiential place of empowerment, refuge, lived relationships and identity — accounted for five of the recommendations alone.
“At-homeness is more a feeling than a physical place or space, and it’s unique to each of us,” Molony said. “It’s a feeling of warmth, centrality and belonging.”
Earlier this year, Molony and her fellow contributors presented the new recommendations before an audience of U.S. Senators and Dementia Advisory Council members in Washington, D.C. Among those in attendance were the architects of the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act, introduced in the U.S. House of Representatives and U.S. Senate recently. The bi-partisan legislation aims to help the Centers for Disease Control and Prevention establish Alzheimer’s Centers for Excellence nationwide, increasing education of public health officials, health care professionals and the public.
Molony hopes the guidelines launch will support the BOLD Infrastructure Act, as well as form the basis for many other endeavors and resources that can benefit families and health care providers.